Just wanted to give everyone a quick update. When we checked into the hospital we started with 4 days x 24 hrs a day of straight chemotherapy. That part of the procedure went well. Last Wednesday Halie received her cells back and was doing great. Starting Friday she developed a fever of 103. This isn't great because it could be a virus or infection and she has no immune system to fight it. On top of that she has developed the mouth and throat soars and generally feels terrible. The fever has been at 103 for three days now, but measured 100 this morning for the first time, so hopefully the fever has broken. Please continue to keep Halie in your prayers.
On a positive note we have really experienced some genuine hospitality from some non-profit organizations.
His Grace - had a big basket of snacks, some toys for Halie and brought us a big meal on the day of transplant. They will also give families a $25 shopping credit and will go to the store for them once a week.
Deck My Room - came in Thursday and decked out the hospital room with pink blankets, pink pillows, put butterfly stickers all over the room and brought two huge bags full of toys for her to play with.
APC Fishing Tournament - gave us a big check that will really help with all the extra expenses that mount with a five week hospital stay.
We have been very blessed by our friends, co-workers and complete strangers through this difficult process. If you are have a little extra jingle in your pocket and want to use it to make a real difference in a child's life, please consider supporting one of these groups.
Thanks,
The Pigott's
October 25, 2010
October 24, 2010
Pain, pain...go away!!!!
This post isn't for the faint hearted! I have sores all through my mouth and throat, stomach and intestinal tract. It is awful. The good news is the pain medication works pretty well. I still vomit and feel pretty yuckie though. Mommy and daddy are troopers. They comfort me and do the best they can to help me. Pray for continued strength as God works moment by moment in my life and my mommy and daddy's. He is carrying us through, Praise the Lord, please make the healing and feeling better come soon!!! Thank you to everyone praying for us. This is soooo very hard for us!
xoxxoxox
xoxxoxox
October 22, 2010
Mommy's post from facebook
Ok Mucusititis has started! Right now it is effecting her gums. Probably the cause of the fever but cannot say for sure. Will progressively get worse over the next few days. We are starting the morphine later today. Please! Please pray for Gods protection over her airways. That it will be a mild case.
Please pray for my mommy and daddy as they help and comfort me through these difficult days. Thank you!!
Please pray for my mommy and daddy as they help and comfort me through these difficult days. Thank you!!
Even in the deep valley, HE is there.
I had a looong, rough night. My fever went up to 103.5...it did break for a short time ... down to 99.0 and this morning it is back up to 103.5. The nurses aren't too alarmed and they say it is "normal." The doctors have cultures going to find out the source of the infection. They have changed my antibiotics as well. Pray it is NOT my central line, pray the fever breaks, pray we all get some rest today. Please pray for mommy and daddy...even though this is "normal" I am sure it is still difficult for mom and dad.
Today is my sisters birthday. Please pray for her as well. We already had a family birthday party for her before I came to the hospital. Pray she feels special today
His mercies are new every morning!
Today is my sisters birthday. Please pray for her as well. We already had a family birthday party for her before I came to the hospital. Pray she feels special today
His mercies are new every morning!