March 11, 2011
A big howdy to ya'll!!!
I have been having soooo much fun at the house with my family I almost forgot to update everyone! Here is what is happening....today...not a fun day ..please pray for me!!! I can't eat anything until the doctors change out my central line. Yes, you heard me right...my central line has to be replaced today. Just found out yesterday during my clinic visit. God is so good to get things worked out for this to be done. I am getting worked into the schedule...that is the difficult thing...waiting...but it will be done today!! I will be admitted again on Sunday to begin the ch14.18 on Monday. Daddy and mommy are with me while we wait (I'm hungry....grr...!!) for my turn for surgery. I like that!!!! I mean the mommy daddy thing :) Anyway...Please pray this goes smoothly and I get to go home today! Please pray for strength for mommy and daddy and...well...my whole family! OK gotta jet for now...I hope they call us back soon!
March 5, 2011
I'm home and feeling great. I get three weeks off to recover from the last treatment. I go back to the hospital again on 3/13, so I have another full week at home. On the 13th I'll be there for a week to get another Ch14.18 treatment, but for now I'm having fun.
Please pray for the follwing needs:
Jason's grandfather had heart surgery and is in recovery please pray that God would heal his body and draw him closer to Christ during this difficult trial.
Please pray for the follwing needs:
Jason's grandfather had heart surgery and is in recovery please pray that God would heal his body and draw him closer to Christ during this difficult trial.
February 22, 2011
A time of quiet rest & sweet refreshment....
Isaiah 32:2 "Each will be like a hiding place from the wind, a shelter from the storm, like streams of water in a dry place, like the shade of a great rock in a weary land"
Johnathan Edwards says There are quiet rest and sweet refreshment in Christ for God's people who are weary. The Lord has given us a sweet time of rest and refreshment. Today at clinic we got the good news that we get 2 weeks off from clinic and Hospital stays. In over 9 months I don't recall having such a long break from the hospital. It comes at such perfect timing. Immunotherapy has proven to be very hard emotionally and physically, We are weary, Yet our God remains faithful and has not tested us beyond what we can handle. His grace has been sufficient. I am looking forward to time at home with the kiddos to just be "normal" Please pray for health in our home as a fever quickly cuts our little reprieve short and we would be back at TCH.
That being said. We are home. Halie is loving it and the kids are having a blast with our new Guinea Pig "Rosie" . The kids are doing great and look forward to time with Daddy, Mommy and Halie.
I wanted to say THANK YOU to our wonderful church family for hosting a Lunch for a Cure for Neuroblastoma Research in honor of Halie. We made over $2,500! What a blessing. It's awesome to see God's people rising up to help those who cannot help themselves. Thank you for your prayers, time and donations. I am excited to mail the check tommorow. We are very blest to have such suportive family and friends.
Good night & God Bless
Johnathan Edwards says There are quiet rest and sweet refreshment in Christ for God's people who are weary. The Lord has given us a sweet time of rest and refreshment. Today at clinic we got the good news that we get 2 weeks off from clinic and Hospital stays. In over 9 months I don't recall having such a long break from the hospital. It comes at such perfect timing. Immunotherapy has proven to be very hard emotionally and physically, We are weary, Yet our God remains faithful and has not tested us beyond what we can handle. His grace has been sufficient. I am looking forward to time at home with the kiddos to just be "normal" Please pray for health in our home as a fever quickly cuts our little reprieve short and we would be back at TCH.
That being said. We are home. Halie is loving it and the kids are having a blast with our new Guinea Pig "Rosie" . The kids are doing great and look forward to time with Daddy, Mommy and Halie.
I wanted to say THANK YOU to our wonderful church family for hosting a Lunch for a Cure for Neuroblastoma Research in honor of Halie. We made over $2,500! What a blessing. It's awesome to see God's people rising up to help those who cannot help themselves. Thank you for your prayers, time and donations. I am excited to mail the check tommorow. We are very blest to have such suportive family and friends.
Good night & God Bless
February 15, 2011
His mercies are new every morning.....
Today has been a better day for me, Thank You Jesus! I was able to start the ch.14.18 around 6 p.m. and the IL-2 at 8:00 last night. I pretty much slept through the night. :) I finally got my Lasik and my I's and O's are looking pretty good. Mommy did the Happy Dance! (actually the peepee dance) Today has been pretty fun. I woke up wanting to play with Daddy, He is the best! Then Mommy and I hung out all morning playing in my room. I took at good nap from all the Benadryl and Morphine but I woke up around 4 with a fever :( Mommy gave me a cool bath and some Tylenol and I am staying pretty steady at 100. Overall a good day. Daddy and Mommy are happy with my blood pressures. Tonight I have tons of energy so I am gonna have to run. We have pet shops to play with after all. Please pray that I have a good night, no low blood pressures, that my tempy stays steady so I can stay on the 9th floor. And please pray for my I's and O's to stay good so Everyone will quit worrying about me peepeeing. Have a great night XOXO Halie
February 14, 2011
He will supply the strength we need -- just in time.
First Peter 4:12 says ....."I beg you not to be unduly alarmed at the fiery ordeals which come to test your faith." Day one of IL-2 & the Ch. 14.18 (Chimeric Antibody) has proven to be another fiery ordeal which has come test our faith. Yet, I am thankful that he has once again proven to supply the strength we need....just in time.
Today has been a rough day for Halie but God has supplied strength in abundance for His precious child. The IL-2 started promptly at 9 a.m. It was a good morning. She played, ate donuts, got to go to the playroom....it was fun. Big love brought a fun basket full of Valentine's Day treats. It seemed like everywhere we turned someone was giving fun bags and treats. Then at 11:00 we started the CH.14.18 it usually takes about three hours for the full effects of the anibody to kick in. Around 1:45 we took blood pressures and they were alarmingly low. Halie was sleeping but we were having trouble rousing her so Dr.'s were called in and the protocol was stopped. So the afternoon has been spent trying work out a plan. Her I's and O's are positive 800 but the decision to give her Lasik has not been made due to blood pressure issues. We are trusting bodly in God's promises knowing that all things are in His mighty hands and will be accomplished for her good and ours.
Today has been a rough day for Halie but God has supplied strength in abundance for His precious child. The IL-2 started promptly at 9 a.m. It was a good morning. She played, ate donuts, got to go to the playroom....it was fun. Big love brought a fun basket full of Valentine's Day treats. It seemed like everywhere we turned someone was giving fun bags and treats. Then at 11:00 we started the CH.14.18 it usually takes about three hours for the full effects of the anibody to kick in. Around 1:45 we took blood pressures and they were alarmingly low. Halie was sleeping but we were having trouble rousing her so Dr.'s were called in and the protocol was stopped. So the afternoon has been spent trying work out a plan. Her I's and O's are positive 800 but the decision to give her Lasik has not been made due to blood pressure issues. We are trusting bodly in God's promises knowing that all things are in His mighty hands and will be accomplished for her good and ours.