YES!!! A strawberry milkshake sounds good....no...maybe....McDonalds....yea!! That sounds good too! I want it all!!!!
Pray the Lord continues to heal me and restore my appetite!
November 4, 2010
Daddy's update ~
Thanks for all your prayers and support. Halie is doing great!
Last week was pretty rough as she ran a pretty high fever all week up to 105 and she had really bad sores in her mouth and throat. it was miserable, but they told us it would be. Starting last Thursday, a week after transplant, the fever went away and she has been looking better and better each day. Yesterday she was practically her normal self and played with her "My Littlest Pet Shop Toys" all day long. They are planning to let her to come home Monday which will be 1 week earlier than most patients.
The only thing left for her to do is start eating. She has been on intravenous feeding for the last two weeks and she doesn't have her appetite back yet.
As far as the remaining request for prayers they did a CT scan a couple days ago. A small 1 mm spot showed up in one of her lungs. The doctors are not concerned right now and say it is something that will just need to be monitored. It is too small to even biopsy, but as a parent it is going to be a long 6 weeks before the next set of scans.
Thanks again for all your prayers and support.
Also, I'm not too good at updating these days. My wife Jennifer did an update herself yesterday which was great. Just scroll down and read!! There are also a few recent pictures we took during the transplant process. She looks cute as always.
Jason
Last week was pretty rough as she ran a pretty high fever all week up to 105 and she had really bad sores in her mouth and throat. it was miserable, but they told us it would be. Starting last Thursday, a week after transplant, the fever went away and she has been looking better and better each day. Yesterday she was practically her normal self and played with her "My Littlest Pet Shop Toys" all day long. They are planning to let her to come home Monday which will be 1 week earlier than most patients.
The only thing left for her to do is start eating. She has been on intravenous feeding for the last two weeks and she doesn't have her appetite back yet.
As far as the remaining request for prayers they did a CT scan a couple days ago. A small 1 mm spot showed up in one of her lungs. The doctors are not concerned right now and say it is something that will just need to be monitored. It is too small to even biopsy, but as a parent it is going to be a long 6 weeks before the next set of scans.
Thanks again for all your prayers and support.
Also, I'm not too good at updating these days. My wife Jennifer did an update herself yesterday which was great. Just scroll down and read!! There are also a few recent pictures we took during the transplant process. She looks cute as always.
Jason
November 2, 2010
A note from Mommy!
My heart is too overwhelmed to say much today. Halie is doing well and getting stronger everyday. Watching her battle for her life these past 6 months has taught me more about my Savior than any sermon I have ever listened to or book that I have ever read. He is more trustworthy than I ever imagined and kinder than my mind can comprehend. That may sound strange in the midst of this particular Valley but psalm 23 rings true in my heart and I rest in the knowledge that He alone is our shepherd and our only hope. I have a poem and a song I want to share with you all today but before I do I want to leave you with a verse penned by John Piper. I read in my quiet time today about his Sovereign Grace and wanted to share this one thought...."Not grace to bar what is not bliss, nor flight from all distress, but this: The grace that orders our trouble and pain, And then, in darkness, is there to sustain...." May He sustain you in your journey......
In honor of our warrior
The Warrior by Terra (Leukemia survivor) written when she was in 8th grade following her diagnosis
The Warrior is a Child
Gazing in the mirror
I see a warrior's face.
Fully clothed in armor,
No fear and no disgrace.
A tear it never offers,
A smile it always gives,
No sadness does it show,
But what life it lives.
Needles going in
As blood is taken out,
But still no sign of pain,
No cries to make you doubt.
Each day you see this person,
And think that they're so brave,
Each day you see us laughing,
The tears are ours to save.
So when you see our armor,
And think we're calm and mild,
Remember this one thing,
The warrior is a child.
- Terra Phillips
This warrior is a child by Twila Paris
Lately I've been winning battles left and right
But even winners can get wounded in the fight
People say that I'm amazing
Strong beyond my years
But they don't see inside of me
I'm hiding all the tears
They don't know that I go running home when I fall down
They don't know who picks me up when no one is around
I drop my sword and cry for just a while
'Cause deep inside this armor
The warrior is a child
Unafraid because His armor is the best
But even soldiers need a quiet place to rest
People say that I'm amazing
Never face retreat
But they don't see the enemies
That lay me at His feet
They don't know that I go running home when I fall down
They don't know who picks me up when no one is around
I drop my sword and and cry for just a while
'Cause deep inside this armor
the warrior is a child
They don't know that I go running home when I fall down
They don't know who picks me up when no one is around
I drop my sword and look up for a smile
'Cause deep inside this armor
Deep inside this armor
Deep inside this armor
The Warrior is a Child
In honor of our warrior
The Warrior by Terra (Leukemia survivor) written when she was in 8th grade following her diagnosis
The Warrior is a Child
Gazing in the mirror
I see a warrior's face.
Fully clothed in armor,
No fear and no disgrace.
A tear it never offers,
A smile it always gives,
No sadness does it show,
But what life it lives.
Needles going in
As blood is taken out,
But still no sign of pain,
No cries to make you doubt.
Each day you see this person,
And think that they're so brave,
Each day you see us laughing,
The tears are ours to save.
So when you see our armor,
And think we're calm and mild,
Remember this one thing,
The warrior is a child.
- Terra Phillips
This warrior is a child by Twila Paris
Lately I've been winning battles left and right
But even winners can get wounded in the fight
People say that I'm amazing
Strong beyond my years
But they don't see inside of me
I'm hiding all the tears
They don't know that I go running home when I fall down
They don't know who picks me up when no one is around
I drop my sword and cry for just a while
'Cause deep inside this armor
The warrior is a child
Unafraid because His armor is the best
But even soldiers need a quiet place to rest
People say that I'm amazing
Never face retreat
But they don't see the enemies
That lay me at His feet
They don't know that I go running home when I fall down
They don't know who picks me up when no one is around
I drop my sword and and cry for just a while
'Cause deep inside this armor
the warrior is a child
They don't know that I go running home when I fall down
They don't know who picks me up when no one is around
I drop my sword and look up for a smile
'Cause deep inside this armor
Deep inside this armor
Deep inside this armor
The Warrior is a Child