October 22, 2010

Mommy's post from facebook

Ok Mucusititis has started! Right now it is effecting her gums. Probably the cause of the fever but cannot say for sure. Will progressively get worse over the next few days. We are starting the morphine later today. Please! Please pray for Gods protection over her airways. That it will be a mild case.

Please pray for my mommy and daddy as they help and comfort me through these difficult days.  Thank you!!

Even in the deep valley, HE is there.

I had a looong, rough night.  My fever went up to 103.5...it did break for a short time ... down to 99.0 and this morning it is back up to 103.5.  The nurses aren't too alarmed and they say it is "normal."  The doctors have cultures going to find out the source of the infection.  They have changed my antibiotics as well.  Pray it is NOT my central line, pray the fever breaks, pray we all get some rest today.  Please pray for mommy and daddy...even though this is "normal" I am sure it is still difficult for mom and dad. 

Today is my sisters birthday.  Please pray for her as well.  We already had a family birthday party for her before I came to the hospital.  Pray she feels special today

  His mercies are new every morning!

October 21, 2010

"facebook" message from Noni

Terry Seefluth Halie was feeling pretty yucky after the transplant yesterday - vomiting, diarrhea(sp?) mouth sores, the shakes. I know the docs said it would be bad, but we were hoping they were wrong on this one. PRAY for her, please!

October 20, 2010

Today is the big day!

Just resting this morning. Today is my big day. I get my stem cells back. Just pray that I don't have a reaction to the chemicals they store them in and that no cancer cells were harvested when they took the stem cells. Felt great yesterday afternoon.

My ANC went down to 200 today...tomorrow I think it will be zero.  Please keep praying for me and my family!

Thank you!

October 19, 2010

Afternoon rest and as good as new!

Hanging at the hospital watching the new Disney movie 'Oceans'. Was feeling pretty run down today and tired. Had a good rest this afternoon, now I'm feeling like normal again. Dad took this picture of me and mom while I was watching the movie.

Starting to feel it

Hey everyone...

My ANC went from 1800 last night to 700 today.  This sounds crazy but please pray my ANC goes to zero by tomorrow...the transplant day.  The doctors say it is best for me to be at no immune system when I get my stem cells...so please pray!  I feel yucky right now...I have been throwing up and feeling sleepy.  This is normal but not a "normal" I like.  God has been very good to me ... this is my first day I really don't feel like playing.  Some kids don't feel like playing on their first day of this treatment...so I have had 6 days to play...woo hoo!!

More later... 

October 18, 2010

No wonder mom likes coffee....caffeine!!!!!

Just resting. Chemo has been running 24 hrs. a day since I checked in. Last night was my last night of chemo. Hopefully done with it forever. Had my first drink of Dr. Pepper last night. Mom and dad never let me drink soda. I stole dad's whole 32 oz. drink. Stayed up to 3:30 am buzzed on caffeine. Watch Pocohontas, Beauty and the Beast and play on the iPad. Mom went and bought caffeine free Dr. Pepper today.

October 17, 2010

Chemo ends tonight

My body has been doing pretty good with the chemo.  Boy this stuff is yuckie!  I feel pretty good when the doctors give me anti-nausea medication and the pain medication.  I am able to play and giggle...but then I get very sleepy and take a nap.  Sleep is good for me, at least that is what mommy says!  Please pray for my brothers and sister while mommy and daddy are here with me.  Nana and pa-pa Pat  are with them which is really good.  I know they are alot of fun!!  Pray for continued protection for my body...once I am done with chemo tonight I will get a couple days of "rest."  This will give my body time to eliminate the chemo medication.  Then I get my stem cells.  Thank you for praying for my family and me!

Time to play....     xoxoxooxx