Halie's musical debut!!!!

http://www.facebook.com/video/video.php?v=1448302898747


Ok, so this blog post was inspired by my beautiful daughter Halie Nicole and Miss Taylor Swift!  Taylor Swift chose CNCF a non profit organization very dear to my heart as her choice for the 2012 CMT music Awards!!!  This Organization works toward finding and funding a cure for Neuroblastoma!  This video was back from may 2010 when Halie was first diagnosed with Stage 4 MYCN Amplified Neuroblastoma!  She loved to sing along with Miss swift and actually let us video this short clip!  Enjoy!  Thank You, Taylor Swift for bringing awarness to this organization that is fighting for the lives of our children!  For our sweet family & friends this is the orgaziation we raise money for with our bake sales you all so graciously conribute too!

Taylor Swift Chooses CNCF

By Richard Munassi

Posted on 30 May 2012 at 4:18pm

Award-winning musician Taylor Swift has chosen The Children’s Neuroblastoma Cancer Foundation (CNCF) as her charity of choice for the 2012 CMT Music Awards!

The Children’s Neuroblastoma Cancer Foundation is a non-profit organization based out of Bloomingdale, Illinois. Established in 2000, the non-profit has managed to raise over $2 million since inception to help find a cure for the aggressive pediatric cancer, as well as to promote education of the disease.

The singer/songwriter is currently nominated in three categories: Video of the Year for “Safe and Sound” featuring the Civil Wars, Female Video of the Year for “Ours,” and Collaborative Video of the Year for “Safe and Sound.” CMT will donate to the charity of choice for the winners of each award given out at the show, which is on June 6.

9 months Cancer Free!

Ok, so It has been too long since I last posted!  Relying a bit too much on facebook.  Halie's scans came back NO EVIDENCE of Disease!!!!  I give thanks to you, Oh Lord my God, with my whole heart, and I will glorify your name forever!   Halie celebrated her 5th Birthday the weekend after scans and what a blessing it was to see her running around, playing and swimming with her friends!  A stark contrast from last year!  Thank You, Jesus!  I have so much to say but I lost my whole post that I was working on for the past hour!  ugh!!!!  I guess my post is meant to be short and sweet today!  My kiddies await me but please watch this video it is Amazing!  LOVE IT!  For all the families whose lives have been changed by Cancer this was a blessing to me I hope it is for you!!!!

We love you all!!!!
Jenn

Please pray for me and my family!

Today I am off to Childrens Hospital to get my pic line for the MIBG and CT scan scheduled for tomorrow.  Please pray for me to not get really scared and stuff.  I don't like needles...but I trust Jesus to make me brave and calm.  Pray for my family to have the Peace of Christ all over them this week while we wait for results of the tests.  Pray for No Evidence of Disease!!!!  Thank you.....  remember.........God is GOOD!!

"But for me it is good to be near God; I have made the Lord my refuge, that I may tell of all your works" (Psalm 73:28).

So the past few weeks have been a little rough... I will spare you all the details but in this trial God has opened my eyes to reveal once again "what is my hope in?"  I believe in my heart that my hope is in the Lord and yet in the day to day as well as the trials that stretch me am I really going to the only one who is my comfort?  How often do I trade lasting comfort for what will bring me immediate relief?  Yet, He continuously seeks me out, He pursues me with an all consuming love.  I keep waiting for Him to change, to realize how flawed I am and give up on me or for His affections to wain as He tires of my persistent sins.  Yet He never does.  His love is never going to change and He loves me as much today as He did the day I laid down all rights to my life and trusted Him to be my Savior.  This past week I read a translation of Philippians 4:13 from a late Greek scholar that reads  "I am strong for all things in the one who constantly infuses strength in me"  I realized that I have been trying so hard for so long to be strong,  To carry a weight that I was never intended to carry, sure when I am stretched beyond what I am able then I run to Him and say "help"  as Spurgeon once said when I get to the end of myself and have exhausted all of my resources then I come to him.  Father help me to run first to you!!!!  I read a post on the Gospel Coalition by Paul  Tripp and It met me right where I am at so I thought I would share with you... hope it encourages you as it has me.

In a fallen world that does not always operate in the way the Creator intended, and where temptation and danger lurk, these words are also vital: "I have made the Lord God my refuge." Under the heat of life in this broken world you will run somewhere for refuge when you become weary, wounded, and discouraged. But you must remember God is the only hiding place worth running to. He alone can heal the wounds of your heart. He alone can give you the strength you need to get up once more and continue. He alone can give inner peace when there is little peace to be found around you. He alone can forgive your sins and strengthen you when you are weak.

But we often forget that grace has given us refuge. We forget that God welcomes us to run to him. So we run to the creation rather than the Creator for refuge, and when we do, we never get the solace we are seeking. We may successfully numb or distract ourselves for a while, but our hearts are not strengthened or encouraged. The replacement refuges of people and things cannot relieve, only distract us from our burdens, so we have to return to them repeatedly. We never end up strengthen and encouraged. We only end up fat, addicted, and indebted. Are you getting it right? When you are weak, weary, and discouraged, do you run to the one refuge who can deliver peace?

O.k. had to add this song....  http://www.youtube.com/watch?v=Ouj1Ai4lIeY&feature=related

Winter Wonderland!

Canada!  Banff Springs, Canada!  It was amazing!  Everywhere you looked it just looked like a Winter wonderland!  Magical.  An amazing time away for me and my sweet hubby.  It was honestly a second honeymoon!  God blest us with a free upgrade to a wonderful room with a fantastic view!  Here is what we woke up to every morning!  Beautiful!  The earth truly displays the glory of God!  Jason and I skied, snowmobiled and just had a wonderful time together! Thank you Lord for giving us this gift! I am so thankful for my sweet husband!