Psalm 56 has been such a comfort for me the past few days. Today as I was reading this precious psalm verse 9 captivated my attention. "This I know, that God is for me." This is a perfect picture of trust and of God's faithfulness. He is for those who trust in Him. This truth fills me with joy today. Do I know this truth? Really? Deeply in my heart? When I look at Halie and watch her unwaivering trust in her parents, she knows we will do what is best for her. And we who are sinful and flawed how much more precious is the truth that God is for us...Father help us remember that wonderful truth when this path of immunotherapy leads us down dark paths that give us only enough light to take the next step.
Well, on that note. Day one went pretty smooth. God has given us a stream in our desert to just breath in the midst of uncertainty and rest in the knowledge that He is for us and that truth will carry us in the good days as well as the ones that leave us fearful and overwhelmed. So for today we offer praises that Halie was up playing in the playroom, painting, riding the halls, eating, drinking and Thank you Lord pee peeing (yes, pee pee is a reason for great triump) One of our biggest worries is kidney damage or capillary leak. When her I's and O's (input and Output are not = it becomes a huge concern.) This fact alone can be life threatning. Yesterday was one of those days it was a concern. We were positive +680. Our I's and O's were not equal. Thankfully they were able to give her Lasik to help her potty. By this morning after a long night of getting up every 2 hours to encourage her to potty we were even for today. We are thankful for those of you who pray so specifically for Halie it's amazing the power of prayer. If tommorow takes a different turn and we are tempted to be afraid pray that we will Remember that He is still for us. Please continue to pray for Halie. As thankful as we are for the uneventfulness of this visit so far :) We are painfully aware how quickly things can start to go wrong. But for today we just say Thank you Jesus for joy and playful days in the midst of this storm.
5 comments:
I love to read your heart! Pee pee is a wonderful thing...completely understand. I praise the Lord that your day has been good and that Halie has enjoyed herself. I'm thankful that there is peace in the moment and that you truly know that God is enough. How these moments help us to KNOW God more, not just have knowledge of Him but know Him first hand. I love you sweet friend and am so thankful to have been able to visit with you yesterday.
Oh Halie I pray your cup runneth over with the peepee. Thanks be to God for the little things. I read tthis morning the difference of joy and happiness. Joy they said is like peace dancing. The daily verses I read are from Ann Graham Lotz. http://www.annegrahamlotz.com/resources/daily-devotional/
thank you Jen for your heart, keep the updaes coming and were praying for even the small "stuff".
Yay to good days and pee pee! :o) I'm glad that it's going better so far this round! Love you all mucho! Praying and praying some more!
Praying for the most boring round ever!
You certainly deserve after that last go round!
So happy Halie that you are Pee Peeing for mommy, daddy, and the doctors. You are one tuff little cookie. :) Corbin had so much fun getting to play with his buddy last weekend. Love you sweet girl.
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