February 6, 2011

When I am afraid I will trust in you.....

Well, here we are again at Texas Children's Hospital getting ready for course 2 of Immunotherapy.  We had an Awesome time at home with the kids this week and felt God's blessing by allowing the kids to have "snow days"  and  hang out at home with our sweet family.  When you have a child who has battled cancer the normal become so precious.  It was a blast.  I have to say I was a little worried this morning when we talked to Halie about needing to pack some things to go back to the hospital. after last time I figured we would have many tears to work through but by the grace of God she was happy to go.  We stopped at the store on the way and she told us to hurry up..  She needed to get to her hospital.  We checked into room 904 and she was so excited to see who our nurse was.  All smiles when nurse Amy walked in...  Kids know when they are loved.   It was fun.  We have so far played pet shop, colored, raced the hospital halls, took an imaginary car ride around the halls (ran out of gas :)  Mommy had to push!  she thought that was funny)  The best part was we broke out!  We did.  We went down to McDonalds :)  It was so fun.  We are totally allowed she is not even hooked up to an IV pole on Sunday we just have to be here for 2 am labs and IL -2 starts promptly at 9 am.  but she thought we were breaking the rules.  it was fantastic.  So worn out from all of our adventures she is sleeping.  Mommy and Daddy are trying to prepare for tomorrow.   If that is really possible.   I am often drawn to the Psalms it seems during times when my heart is to tender for much else (my weakest days)  I can find a Kindred Soul there...  it is like sitting with a trusted friend who knows your faults but loves you anyways.  That is where I find myself tonight.  I am afraid.  "But I have set the Lord always before me.   Because He is at my right hand I will not be shaken".   Jerry Bridges says that "Trust is not a passive state of mind.  It is vigorous act of the soul by which we choose to lay hold of the promises of God and cling to them despite the adversity that at times seeks to overwhelm us." So tonight we lay hold of the promises of God and obey not knowing what tomorrow may hold but trusting in the God who does.  Please join our family in praying for Halie tonight.  Specific prayer request: 

  • That she can tolerate the IL-2  it will run for 96 hours straight
  • That she will not get fluid build up in her lungs!
  • That she will not have an allergic reaction ( forms are life threatening)
  • That her body will continue to tolerate the Immunotherapy and she will be able to continue the trial
  • That the drugs would do what they are supposed to do (That God would use them to teach her body to fight Neuroblastoma) and that any MRD would be annihilated.)
  • For our kids at home who miss their Daddy, Mommy & little sister
  • For Noni and Nana as they take care of our precious ones at home!
BAKE SALE UPDATE!!!

Oh yes, by the way for those of you who have contacted us about helping with the Bake sale Friday February the 11th at The 3rd floor foot bridge TCH 10-2 Tracey Willis will be picking up any bake sale items that you all so generously donated to help raise money for Neuroblastoma Research.  She will pick them up at the Church Wednesday night and take them to my Mom who will get them to the correct person in time for the sale.  Thanks so much for being the hands and feet of Christ for us with this one.  You all know our passion especially after going through one course of Immunotherapy!  And we are in - patient unable to bake or serve and as always God provides through His people.  I love you all (You know who you are)  Thank You!  Thank You!

3 comments:

Roberta said...

Jen, thanks for the update. Prayers are going up. You are right about the Psalms, they are so refreshing to read. Thank you for being a witness in trusting, in so many ways you are touching others. Jason, group hug to you all. Love you all!!

The Stire family said...

Jenn, you and Jason and Halie are often in my mind and in my prayers. Even though we haven't talked lately, I see our photo together each time I sit at my desk (daily) and thank God for such an amazing friend who is radiating a godly trust in the Lord. You challenge and encourage me greatly. Is there a number in the hospital room that I can call on? You can e-mail it to me if it's OK to call. I love you!

b288d910-32cb-11e0-805f-000bcdcb471e said...

I have leaned on the Psalms many times during Savannah's journey. You are all in our prayers.

Post a Comment